Sorry for the delay since my last post, but this past Saturday night I was hit with some kind of a bug that caused a high fever, which completely debilitated me. As all of you suffering from MS know, "MS" + "Rise in Body Temperature" = "Bad Stuff", and this was an extreme example of that concept.
I started feeling sick Saturday afternoon, and by Saturday night at 9:30 PM my body temperature had risen high enough to render me, for all intents and purposes, completely paralyzed. My wife called my neuro, who said to get immediately to the hospital. Had to get there by ambulance, since I couldn't really move on my own.
The saga at the hospital was another story entirely, which I will relate in my next post. I'm back home now, having been discharged yesterday evening. I'm exhausted, still running a slight fever, but starting to feel a little bit better. Hopefully, things will improve day by day. For those who have sent me e-mails over the last few days, I'll try to respond to them as soon as I'm feeling up to it.
I'll be back with a full report just as soon as I'm well enough, which hopefully won't be too long. Until then, remember, go fast, even if you're fast is slow...
Get well. The blog will still be there. Sorry you had to go through that.
ReplyDeletePeace,
Muff
Thinking of you and wishing you well. Really, really wishing you well.
ReplyDeleteA fan
Also hoping you get better soon
ReplyDeleteBest wishes
Anne in Toronto
Marc please get better soon, I've tried to swear off the red and white bus, it is not pleasant. The instant progression is scary in many ways.
ReplyDeleteMarc,
ReplyDeleteKnew something was wrong. You are so reliable with the blog. Worried for you each day that I saw no new writing.
Take your time and just be well. Always include you in my "visualization" to heal.
Virtual hug to you....
"go fast even if your fast is slow..."
ReplyDeleteI like that quote. Feel better. Aarcyn
Be well. You've got your priorities straight.
ReplyDeleteJudy
Marc, hope you feel better soon
ReplyDeleteEd
Wishing you a speedy recovery.
ReplyDeletewe count on you in many ways.
Feel better soon. Sending you all positive thoughts from over the pond. We'll all still be here when you get back. :-)
ReplyDeleteAnn
Hope you get over this bug soon, Marc. As if the Summer heat wasn't enough to deal with! Good to hear you are on the mend.
ReplyDeleteGet well mate!
ReplyDelete(for whatever a wish my anonymous fan is worset)
Marc, Had gotten worried and sent all my Mom worrying thoughts your way. Feel better soon!
ReplyDeletekicker
i noticed a big void in my menu bar. thanks for letting us know. be well and see you soon.
ReplyDeleteSo sorry to hear you've been ill...I'm putting +++ healing energy in your direction, M!
ReplyDeleteHope you feel better soon-- take good care and rest as much as you can!
ReplyDeleteprairiegirl
i sure hope each day is showing rapid improvement
ReplyDeletedon't worry about us, we'll just sit here, staring at that photo of you and wait, lol
all my thoughts are with you Marc.......
Janet
Get well soon Marc! Take extra good care of yourself!!
ReplyDeleteHope that each day finds you feeling more and more like your wonderful self!
Moshe
Hey Marc,
ReplyDeleteGlad to hear that you're out of the hospital and feeling better.. I was diagnosed in 1998 and since then have had only one really bad flu with a high fever.. That really knocked me out, I could hardly move. I now make sure to get a flu shot every year, although there are no guarantees that you won't get sick...
I really enjoy reading your blog.. Take care my friend and get well soon..
Pete
Bartlett, IL
That must have been so scary, for both you and your wife! I'm glad you're out of the hospital and hope that you stay that way.
ReplyDelete--Hollie
Get well soon!
ReplyDeleteOh no, not an ambulance!!
ReplyDeleteGlad you got the care you needed though.
{{hugs}} to you and Karen.
love,
me
Really sorry to hear that you had to deal with a fever as an MS'er. It really can kick the crap out of you! But from following your posts for many moons now, I'm guessing that you'll handle this interruption with great bravado as usual.
ReplyDeleteJust another experience to glean from. Wonderful-grrr
Hang tuff Marc
Marc,
ReplyDeletenows a good time for a little mojo vapor! Another test. BUild you up , knock you down, up down, up down, military MS. Get your strength back and finish the rest of the blog. Your killing me!
Greek
Hope you are feeling stronger each day. You were missed by SO many who have come to count on you!
ReplyDeleteBe well, dear friend,
Roberta
I hope you're feeling stronger day by day. FEVER is an evil monster to the likes of us.
ReplyDeleteA recent angle that I've considered takes CCSVI treatment to the next level (perhaps based on my impatience with the current snails pace).
In a conversation with my NeuroNaysayer when asked about CCSVI, he responded 'half of Zamboni's patients reoccluded anyway'. Do you think that that was his way of saying 'why bother'. aaarrrrgh!
My thought is that perfecting the stenting process with stents specifically designed for the jugular vein and the azygous vein would be critical to the future of treatment. The reoccluded issue, it seems, would no longer be. I'm tired of hearing new drugs in the 'pipeline'. This is the means by which big Pharma touts their worth to 'the market' (investors). It's time for new stents to be in the 'pipeline'.
A company named Cordis is a subsidiary of Johnson & Johnson. I know personally of one person who had the Cordis S.M.A.R.T stent put in (Poland) and I saw another post of a patient also using this stent. I forwarded this info to an individual who works in sales for Cordis and he was going to forward this info to their Clinical Research & Product Development teams.
Now they may already be working on this but pleas from the MS masses couldn't hurt.
HAVE YOUR VOICE HEARD!
email your demand to:
cordis_endo@crdus.jnj.com (endovascular)
or
ra-crdus-cypher_USA@crdus.jnj.com (stents)
include this link in the email:
http://bmctoday.net/evtoday/2010/07/article.asp?f=chronic-cerebrospinal-venous-insufficiency
To point to the clinical legitimacy by
Dr. Sclafani with supporting commentary by Dr. Dake and Dr. Katzen:
Now, to put the icing on the cake, find the email of an Interventional Radiologist and/or Vascular Surgeon in your area and copy them on the email.
Let's face it. Both of these parties could make money off of us. ..since we know money talks and that's what keeps the drugs coming down the pipeline!
Marc, I hope you're feeling stronger today and will sleep well tonight.
Girl Warrior
Take care and get well fast!
ReplyDeletethinking of you marc,hoping you are feeling a bit better every day.
ReplyDeleteMarc, getting worried, no big awesome article needed, just a line or two to let us know how you are.
ReplyDeletehoping you get better soon
ReplyDeleteBest wishe