Thursday, March 31, 2016

Outrageous! Doctors Earn Luxury Goods by Answering Pharma Funded Surveys

(A quick note: Sorry about the extended time between blog posts, but I was dealing with some nagging respiratory yuckiness that left me with barely a voice, which makes writing blog posts using voice recognition software damn well near impossible. MS has made typing out of the question, thus the long hiatus. Well, now my voice is back, and so is the blog…)

Okay, here’s one for the “you can’t make this crap up” file.

A physician friend of mine – who shall remain nameless lest he/she incur the wrath of the Pharma beasties – forwarded me the following note they received via email, offering a generous rewards program in return for answering questionnaires designed to gather information that would help pharmaceutical companies maximize their ability to impact physicians' prescription writing inclinations, or, as the note less ominously puts it “to observe and improve the quality of the information you receive from the pharmaceutical industry”. The message came from a marketing/data mining company that uses sophisticated methodologies to maximize marketing, branding, and product launches in the health services industries. My physician friend tells me they receive several such emails every week.

Here’s the note, with any identifying or proprietary information redacted so that I don’t get sued for publishing it:


Dear Dr. XXXXX XXXXXXX

We would like to invite you to join our regular study on the medical information delivered by pharmaceutical companies. The objectives of this study are to observe and improve the quality of the contacts and information that you receive from the pharmaceutical industry through:

o individual interactions (in person and online)

o events (in person and online)

o direct mail (postal and email)

o clinical trials and product samples

As we work to help improve minor modifications to better align with your activity. These will allow life science researchers to measure your perception and satisfaction with the aim of adapting and improving the quality of information you continue to receive.

To thank you for your time and participation, we offer generous incentives which allow you to earn and accumulate points for each questionnaire you complete. The more questionnaires you fill-in, the more points you earn. We also offer loyalty program which rewards you 25% more points, if you participate for 12 consecutive months. At any time, you can use your points to redeem:

o   Flight tickets to destinations in the Caribbean, Europe, Central & South America, Asia, Australia and South Pacific, Africa and Middle East, Mexico, Canada and the US

o   International and domestic vacation packages including tours, sightseeing and cruises

o   Admission to theaters, concerts, sports events, amusement parks and many outdoor adventures

o   Merchandise including home appliances, furniture, home and garden products,  jewelry, toys, baby products, apparel, tools, office supplies, outdoor products

o   Health and Fitness products and equipment

o Electronics including TV, audio/video equipment, cameras and camcorders, computers, Apple iPads, iPhone, video games and consoles, GPS devices, printers/copiers

You can preview our incentive selections from our website at XXXXXXXXX.com using the trial login "XXX" and password "XXXXXXX"

To sign up, simply complete the form below with your preferred contact information. You can fax it back to me at XXX – XXX – XXXX or e-mail at XXXXXXXXX.com

Doctor name:                                                        First/last name:   
Specialty:  
Phone and  fax:
Mailing address:    
Email address:


If you have any question about the survey or the incentives, please call me at this toll-free number XXX – XXX – XXXX. I will be more than happy assist you.


PLEASE NOTE:  This e-mail and any attachments may be confidential or privileged and is solely for the intended addressee(s).  Do not share or use without XXX approval.  If received in error, please contact the sender and delete the email and any attachments.

 
Wouldn’t you like to earn international vacation packages and high-end luxury items just by answering surveys? Well, if you would, you’d better become a doctor. Because, you know, doctors need all of the financial assistance they can get since they are so underpaid in relation to those in other professions, like schoolteachers (who really make me want to retch, the hedonistic bastards).

I took the liberty of perusing the catalog of items available via the survey rewards program, and found that they include goodies ranging from free music downloads to high-end appliances and home furnishings to every kind of electronic gadget imaginable to European vacation packages. A single music download will cost a participating physician 278 points, front row tickets to a New York Rangers hockey game in Madison Square Garden (including food and nonalcoholic beverages) 337,489 points, and an unlocked 64 Gb Apple iPhone 6 plus 205,363 points. Oh, and a 15 night transatlantic cruise leaving from Rome and arriving in Miami, with stops in France and Spain along the way, will set some lucky questionnaire answering physician back 466,277 points (per person), which seems like a heckuva bargain given the cost of the hockey game.

Of course, it’s not the marketing company that is footing the bill for these “rewards”, but their pharmaceutical company clients. And why would pharmaceutical companies be willing to pay through the nose for information that would allow them to hone their messaging to doctors? Simply put, because the doctors know damn well where these rewards come from, and studies have documented that rewarding doctors with cash or goods has a quantifiable effect on their prescription writing practices. One such study (click here and here) found that “Even small handouts--such as free meals and payments worth $100 or less--tweaked branded scripts upward. Doctors who participated were two to three times more likely to prescribe brands than those who didn't. There was also a dose response: The bigger the value of payments and gifts, the more branded scripts… Doctors who received more than $5,000 in a year's time chalked up the highest percentages of branded scripts.” And make no mistake, pharmaceutical companies carefully track just how many prescriptions for their drugs doctors are writing, and routinely use such info to target those physicians who are “underperforming”.

It’s well known that pharmaceutical companies regularly pay the doctors who prescribe their products cash money, in the form of "consulting fees” and “honoraria”. More often than not, these consulting fees and honoraria are paid to doctors who simply talk to other doctors about a prescription drug, quite often over a free meal at a fine restaurant, or for giving a presentation on the drug at a symposium. Some doctors rack up tens of thousands of dollars per year in these fees, as has been made public via the Open Payments website, which was mandated by the US government in the Affordable Care Act.

While the Open Payments website itself is not all that user-friendly, the organization Pro Publica has built their own patient friendly portal to access the database, called “Dollars for Doctors” (click here). This website makes it extremely easy for patients to enter their doctors’ names and locations and come up with a list of all of the pharmaceutical company payments their doctors received from August 2013 to December 2014. Believe me, some of the numbers will shock you. One physician, a family medicine doctor in California, received nearly $44 million for “promotional speaking/other” during the 18 months in question. Yowza, for that money he must be quite the electrifying speaker, able to talk to the green off of an iguana. Using the site, I found that my first MS neurologist netted $72,580 during that time period, while my current neuro received a grand total of $17, which is one of the reasons he’s my current neuro.

It’s because this information is so accessible that pharmaceutical companies are finding new and more creative ways to funnel money and rewards to doctors, ways which bypass the laws and never see the light of day, such as handsomely rewarding doctors for answering questionnaires. Pharma has also increasingly taken to paying for physicians Continuing Medical Education (CME) courses, a practice that has seen a 25% jump since 2011 (the mandate that dictates public disclosure of physician payments went into effect in 2010).

All of this begs the question, how on earth is it tolerated, never mind legal, for pharmaceutical companies to pay the physicians who dispense their products? To my knowledge, this is the only industry in which such widespread and lucrative “consulting fees” and “honoraria” are considered everyday business. In most other lines of work such payments are called “bribes” and “kickbacks”. In the latter part of my career I worked for one of the major international music and entertainment conglomerates, and if we were caught paying a disc jockey to play one of our records (a practice known as “payola”) people would go to jail. Somehow, though, these practices are business as usual in the medical profession.

Pharmaceutical companies and the doctors who have their hands out frequently claim that these efforts ensure that physicians stay well-informed on the latest and greatest drug info, but are we really to believe that doctors would remain hopelessly ignorant if such palm greasing and wallet filling shenanigans were prohibited? What, would physicians suddenly forget how to read medical journals and the informational materials provided to them for free by the pharmaceutical companies? Has the Hippocratic oath been altered to state “First, do no harm. Second, information about pharmaceutical products not accompanied by copious amounts of dough shall be ignored”?

These issues are especially important to patients suffering from chronic diseases like Multiple Sclerosis who must rely on hideously expensive drugs, many of which carry with them a frightening list of potential side effects, to try to keep their disease at bay. We must trust that our physicians are choosing drugs and giving advice based on their keen medical insights and years of experience, and not because drug company monies have influenced their decision-making processes. The doctor-patient relationship for those suffering from chronic and potentially debilitating illnesses is a long-term affair, not a one night fling. As with all such relationships, trust is the beating heart of these partnerships, as life altering decisions hang in the balance. The fact that even the hint of financial self-interest on the part of the doctor might play a role in this complicated equation is, quite frankly, obscene.

I’ll now get off of my electronic soapbox, but I would encourage each and every one of you residing here in The States to quickly look up their doctors on the Dollars for Doctors website (click here), to see just how much financial benefit your physician has reaped through these dubious practices. This is not to say that every physician receiving large amounts of money from the pharmaceutical companies is corrupt, or has fallen under the spell of Big Pharma. But knowledge is power, and if your doctor has taken what appears to be more than their fair share, I’d say a frank conversation is warranted. No need to be confrontational, but certainly a cogent explanation would be welcome. Remember, for those of us suffering from long-term illnesses, the doctor-patient relationship must be a partnership, not a dictatorship. Ultimately, keeping yourself well-informed on all facets of the management of your disease may in fact be the very best medicine…

Hey, just for kicks, why don't those of you who do look up your doctors on the Dollars for Doctors website tell us how much pharmaceutical money your doctor received using the comments section of this post. Might allow us to contrast and compare… And vent and rant and rave…

68 comments:

  1. Witnessed a new approach while in the waiting room for a cardiology appointment. Someone delivered at 60 inch flat screen TV along with an informational DVD. Can't count on docs having something to play these things back on without delivering it.

    The dimensions of these programs stood out in an article this week about one company that introduced a new $7.7 million speaker's bureau program and saw sales jump $287 million in the following quarter.

    It's like politicians. When they are collecting all that money to pay for their elections, the companies providing it are expecting something in return. So how will legislators who have their hands out ever do anything to change the way doctors are legally bribed to prescribe a particular drug?

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    1. Edward, that is a new one! I guess we have to give them points for creativity, no? What's next, providing them with automobiles so they can drive to dinner to talk with some doctors and collect their consulting fees?

      Of course, no room for the corrupting influence of big-ticket gifts or cash possible, right? And I have a bridge I can sell you in Brooklyn…

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  2. I see a few different doctors. My primary care doctor has received $38, according to the Dollars for Doctors website. My rheumatologist has received $1,842. My psychiatrist has received $553.

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    1. All in all, not too bad, I'd say. I'm thinking that, generally, anything under $5000 is okay. That's the point at which the research shows the influence really goes up…

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  3. Marc, your investigative journalism skills continue to shine. Another amazing article! My neurologist – $420. He's a keeper.

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    1. Thanks for the kind words, Mitch. Yeah, that sounds like your guy is good to go. With so much money being thrown around, doctors with only a few hundred dollars next to their names seemed fairly innocent…

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    1. Thanks. Thanks for contributing to the conversation…

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  5. My GP was $900, my Neuro was $200. Okay my GP will get it first.

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    1. Hey Dawn, given how much money some of these other doctors make, seems like your guys are not that bad. I would really get upset at around the $5000 level, but I think I'd let anything under $1000 slip by… But, would still be interesting to hear what your GP has to say, if you do ask…

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  6. My neurologist - 63K, my clinical trial study neurologist - 153K. Living in Lexington, KY I don't have many options. On the up side - I just completed HSCT in Israel with their support. They are both very interested in seeing how my MS responds. I think the almighty dollar prevails.

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    1. Wow, you guys really racked up the big bucks! Congrats on the HSCT, please do let us know how it goes. Wishing you the best…

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  7. My former neuro-a real sleaze, was number 1 in the state for pharma payoffs at 435K. Not really surprised. He also parked in the handicapped parking, because there was no other parking in the lot. I was barely walking at the time (7 years ago) and had to trudge 3 blocks for the appointment. Oh, and the buffet luncheons where the wheelchair bound patients had to try and wheel their chairs with full plates on their laps.

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    1. Geez, that guy sounds like a real winner. A neuro parking in a handicapped spot? Shame on him…

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  8. My neuro in NYC - $675. In this age of "thousands and thousands" - it sounds like a pittance. I've been with my doctor for almost 20 years and really like him; so this amount doesn't seem to warrant a conversation.

    Still - the money 'exchange' is sleazy as you say, and I don't get it either… (except I DO get it - in this world of
    pay to play.).

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    1. I agree with your assessment of your neuros relatively small acceptance of bribes. It's just incredible that this kind of thing goes on all the time, when it would be considered illegal in most other professions. But, as Edward mentioned, above, it's corrupt politicians making the laws governing corrupt pharmaceutical company practices, so is it really that surprising?

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    2. lol just like lawyers, bankers, financial services sector and real estate agents.

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  9. Mý neuro $7. I spoke to him once before about this and he suggested to me that the industry was slime. He's a keeper too. Great article. Thanks.

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    1. My neuro has the same opinion of the industry as yours. He doesn't even let pharmaceutical representatives past the front door of his clinic. His is the only doctor's office I've visited that doesn't have drug name labeled posters, pens, sticky notes, and other assorted items. Very nice not to have to worry about conflicts of interest…

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  10. Mý neuro $7. I spoke to him once before about this and he suggested to me that the industry was slime. He's a keeper too. Great article. Thanks.

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  11. Neuro: $27,134. That really depresses me. Endocrinologist: $1305. Primary Care: $1513. Hmmm.

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    1. Upsetting to think that your neuro is taking in more money from the pharmaceutical companies than many people make in a year. Ridiculous.

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  12. How depressing! My NYC Neurologist(MS specialist) 129,000. He's been my second opinion guy. Never liked him because all he cared about after my CIS was getting me on a drug. Just like my first NYC dr. I refused and both started to treat me like a 2nd class citizen. Problem is, Sadiq, the dr I want to go to doesn't take any insurance. Whats a girl to do? It's so frustrating...I am desperate for a Dr who friggin cares about the hell I have been going through. Any help out there? Any NYC or NJ Doc recommendations of someone I can trust?

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    1. Someone I can trust... I think you hit the nail on the head Nicole.

      JE

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    2. Nicole, Dr. Sadiq is my neurologist, and although he doesn't take insurance, my plan does cover 70% of the cost of my office visits to him. I just have to submit the claims myself. You should check your plan to see what the deal is. Insurance does cover any procedures he performs or drugs he provides. So, all things considered, it's really not that bad.

      If your plan doesn't cover "out-of-network" physicians, then you should still call Dr. Sadiq's clinic, as I think he does have some neurologists working there who do take insurance. It's worth a try, anyway. His clinic phone number is 212-265-8070.

      Geez, sounds like I'm shilling for him, but everybody in his clinic is very, very good (including the nurses, office staff, physical therapists, and other folks), and I wish all MS patients could be under his care or the care of one of the other neuros in the place.

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    3. Call was already made last Friday after reading your Blog and getting disgusted with my current doc. Thank you for doing what you do. My son and I look for you in the city hoping to see you cruising around one day. Although, no one would want me to be in front of you with your camera....not a good backside view at the moment. ;) we enjoy those clips. Glad your feeling better and I'm always checking back for new posts.

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  13. I looked up a lot of neurologists at various MS centers and a lot of them are getting a ton of money from pharma. And it seems like the more experienced and renowned you are the more money you get. There is a certain neuro in Philly who I wanted to see, but he had a long wait. I am glad I didn't go to him because he is getting 400k! Holy crap! My neuro is getting around 5K. Is that good or bad?

    I am wondering if you get money from pharma, does that really mean you are a corrupt doctor? What kind of payments raise a red flags? I see a lot for "food and beverage", "consulting", "education", which don't sound so bad. Then there is "promotional speaking", "honoraria" that definitely sound like shady business.

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    1. Eh...i re-read your post and you explain consulting and honoraria. My brain is not that sharp anymore...thanks to MS.

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    2. Pretty much all of the types of payments listed on the Dollars for Docs website can be considered pretty shady, even though accepting them is a pretty standard practice amongst doctors. Keep in mind, payments for research work are not included in the database, so all of those other fees paid are for promoting the pharmaceutical companies drugs in one form or another.

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    3. How does one bring up this conversation with their doctor? What is the right etiquette? My neuro got peanuts compared to some others in his office. Most money was for a drug he never once mentioned to me. I think he is a good guy.

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  14. my MS neuro got 12,500 from 2013 2014 mostly from copaxone.

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    1. Just FYI, copaxone was the best-selling MS drug last year, raking in $4 billion in sales. Yes, 4 billion, with a "B"…

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    2. Maybe Copaxone is the best selling because it is the least poisonous? (ex rebif guy here)

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  15. Neurologist $428, GP $242. My Neurologist is involved in many studies but doesn't push anything.
    I have PPMS diagnosed in 2002, on Copaxone last 10 years.

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    1. Sounds like your doctors are pretty much on the up and up. Has the copaxone had any impact on your PPMS?

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  16. My neuro - $7,562 (Aug. 2013 to Dec. 2014)...a little disappointed but she doesn't harp on me taking anything (I have SPMS and take no drugs but Vicodin - and I see a Pain Dr for that).

    Pain doctor only took $2,535 - I'm very pleased about that. Oooh, new Pain Management doctor only took $52! Yea, him! GP took $129.

    I'm happy! :D

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    1. Glad that your neurologist isn't pushing any drugs on you despite taking a pretty good chunk of Pharma dollars. Although compared to other doctors, which she took appears to be a pittance…

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  17. Replies
    1. Yes, unfortunately it is only for US doctors. I don't think the problem is quite as big in other countries, though, especially those with single-payer systems. Still, it would be nice to see how much of this is going on in places other than the US. This info is only now available because the government passed a law making it so…

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  18. I do not see this neurologist, but he is promoted as the primary "MS Physician" in my area ... $207,000! He does participate in clinical trials. Is any of this money reimbursement for employee time completing clinical research data? As a former research nurse/clinical research professional, I know that physicians that participate in community based clinical trials do get compensated for the time it takes to evaluate and document treatment and response for patients receiving clinical trial treatment. Every side effect has to be evaluated to determine if it is connected to study treatment, severity, and duration. This takes a great deal of time. My job included screening for patient eligibility and enrollment in clinical trials, as well as coordinating and documentation of treatment. All of the documentation of clinical trial treatment was reviewed and monitored by an outside source, and I regularly met with those providing the oversight to answer questions and prove my evaluations were supported by source documentation. It was very time intensive and I only saw research patients. The only reason I was employed was because the physicians I worked for participated in community research trials. If the money covered the cost of employees to conduct the research, perhaps it may be legitimate? Physicians who participate in community based clinical trials make it possible for patients to obtain clinical trial treatment in their own community without having to travel to a big metropolitan center. Marc, as you suggested, a conversation with a physician may be in order if the amount on the Dollars for Doctors site is high ... or if you are certain that the numbers on Dollars for Doctors has nothing to do with clinical trials ... mea culpa.

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    1. According to the Dollars for Docs website, the figures cited don't include funds for research, only for things that could be considered promotional activities. They say research funds will be included at some later date, but doctors being paid for research would be a good thing, I would think. As long as the research remains unbiased…

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    2. Well then, I can think of no good reason why this doctor should get 207K from pharmaceutical companies. I checked on the other 'MS specialist' in my area and he received $82,504! If I had taken the time to read the top paragraph on the Dollars for Doctors site, I would have seen that research money was not included. Marc, I live near Albany NY and there are only two 'MS Specialists' that I am aware of in my area and I chose not to see either of them for other reasons. Both are receiving considerable financial compensation from Big Pharma. I find this shocking and disheartening. Thank you for opening my eyes (although I do not like what I am seeing). As for the research remaining unbiased, research is a very time consuming and costly venture and many of those who are investing in research will gain financially from the outcome (Big Pharma). Evidenced based practice sounds good, but if medical treatment is based on the results of clinical trials and many of the clinical trials are funded by Big Pharma ... money continues to drive medical treatment.

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  19. My neurologist received $44,842. I was surprised and saddened to find this out because I have had to travel an hour and half one way to see her twice yearly for the last 11 years. I have PPMS and am not on a disease modifying drug, although she did suggest I take Copaxone a few years ago. I elected not to do it.

    I find this whole post and its subject matter very appalling. I guess I have been unnecessarily naïve about Big Pharma. Thank you for opening my eyes.

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    1. Sorry to hear that your neuro took so much money, and that you really don't have another choice. Remember, though, that just because he's taking the money doesn't necessarily mean that it's influencing his decision-making process, although logic would seem to dictate that it would.

      As far as your being naïve, I think lots of people are in the dark in this regard. As far as the pharmaceutical companies are concerned, ignorance is bliss…

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  20. Neuro: $3,358, my PCP on the other hand didn't even show up. So yay for that i guess.

    Decided to look up my state (KY) and there's apparently an orthopedic surgeon that's received $1.05 MILLION. That's disgusting.

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    1. $1 million? Yikes! That's really disturbing. And I'm sure, if asked, he'd say it was all entirely innocent and had no influence on him whatsoever… And monkeys might fly out of my butt…

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  21. $2500 for my neuro. Primary didn't show up. I'm getting HSCT this summer so no more CRAP drugs. But I haven't supported the drug companies the last 6 or so years. And my neuro didn't complain or pressure me much.

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    1. Good luck with the HSCT, Brianna. Glad to hear that you were under no pressure to give the drug companies your support. Thing is that some of their products really do seem to keep relapses and new lesions at bay, even with all the scary potential side effects. Such a crazy state of affairs…

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  22. My PCP took $648. Not bad, I think.
    Neuro took $4,717. Worse, but I like him anyway.
    The shocker (or maybe not because I know him) is my Dermatologist who took $97,328!!! I also know that "he" does many cosmetic procedures. I put the quotes around the "he" because he trains young girls to do some of them and then pays just over minimum wage. Usually I see one of his PAs who I like but I always question why my insurance pays the same for a visit with PAs as for doctors.

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    1. That dermatologist sounds like a real gem. How can these doctors get away with this kind of crap? It's really outrageous…

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  23. Almost all of my docs didn't show up at all, but then, I don't have a Neurologist. My eye doc was the only one and it with a hit and it was only $28. So what would Food & Beverage" be? A seminar the doc showed up for that demonstrated equipment or something like that?

    Thanks Marc, this is a great site. I sent a link around to all my friends and family. My sister reported that a doc she once went to, nicknamed "Cruella deFosamax" had taken $72,000, all for Consulting or Promotional Speaking on those so-called bone building drugs. Which. They. Are. NOT

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    1. Daphne, thanks for publicizing the site. People really need to know this info when choosing their doctors.

      More often than not, food and beverage applies to pharmaceutical representatives buying the office staff lunch. Believe it or not, some doctors offices wind up getting free lunch the majority of days of the week. That's how pervasive these former reps are… Of course, this wins them much favor with the office staff, which gives them ready access to the doctors…

      The food and beverage payments could also include paying doctors to attend dinners at which drugs are being promoted…

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    2. Thank you Marc for the tremendous effort you put into researching and keeping us so well-informed. My neurologist works with the same team of doctors that work with your your doctor, Dr. Sadiq in New York. I was saddened to see that my neurologist earned over $20,000 in payments. I really like him and I feel that he's been the best neurologist I've ever had. So it's upsetting to learn this information about him. I don't know if I have the guts to ask him about it?

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  24. Thank you for your effort. Outrageous. My neurologist 83,000. Former neurologist 200,000!

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  25. My wife has seen two neuros - the first received $197.00, the second one (who is no longer local) got $236,000!!!!. She does many informational seminars on ms sponsored by Biogen.

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  26. On the flip side, maybe if your doc did not receive any money then he or she is just no damn good:-)

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  27. Some physicians in fact receive grants for research.

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  28. Holy crap! My nero received $703,166 - #1 in my state (CA). I like the guy and he seems to have my best interests in mind, but maybe this explains why he is quick to discount any non-traditional therapies that I bring up. I guess it is good that I tend to "drive my own bus", I certainly listen to his opinion, but I decide what therapies I take on.

    Might be time to start looking at other options though...

    https://projects.propublica.org/docdollars/doctors/pid/20469

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  29. This website is very eye-opening, thanks for sharing the information. As usual your blog is fabulous and very informative, thank you for all your great work!!! My nero $4137 my pcp $3672

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  30. Well crap. My neurologist at the medical school whom I love brought in $33,399. They break it down into categories of payment and drugs involved. He is mostly paid consulting fees for hawking Gilenya and Tecfidera. Although his famous neurology partner took in $340,000. I guess $33,399 is better than $340,000 but still..... Love that my family doctor took $181.

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  31. With all that money floating around, you'd think they'd have made a bit more of a dent in actually treating diseases like MS, Lupis, Lyme, etc. And how come when I fill out a survey, I don't get no perks?

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    1. Agreed!

      At this point, it seems that the NMSS's educational outreach efforts tend to work against patients' interests rather than for them. The never-ending river of donated monies that are then put toward campaigns designed to show people how well, strong, happy, and hopeful certain MS patients feel confuses the issue for the general public. (Nobody is putting down positive thinking, but that isn't the issue here.)

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  32. Ut-oh. My new neurologist is supposedly the top one in Pennsylvania. He was telling me about some of these events he's attended where he's speaking about his own findings, then having drinks with a few other doctors afterwards. According to this list, he's made $403,184. And has a 70% chance of suggesting a brand name drug. His list of payments doesn't specify Tysabri by name, but he's always trying to push that in my general direction.

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  33. Thank you for sharing your research knowledge and websites access. My first visit to Dollars for Docs... rendered me numb.

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  34. Nothing on my neuro, but he is the Dean of the Medical School and he helps pull in a LOT of research dollars... so did my last, absolutely amazing neuro before I moved. We have done Plegridy, and now I'm on Tecfidera, which seems to work but MY, those gut side effects! I kind of prefer being in a research hospital with dedicated MS neuros who DO research. That was my first neuro's situation (he got me int he phase II Ocrelizumab trial, amazing stuff)and I hope to keep the one I have! Other than pretty much insisting I restart a med after I had a bad relapse that lasted two months, he's not pushy at all. Right now Biogen is footing my copay. It seems it is possible to balance my ethics with my MS--but perhaps not always possible in all cases.

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