tag:blogger.com,1999:blog-3605254543761446258.post1139525371690677777..comments2012-01-11T22:08:32.857-05:00The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-3605254543761446258.post-27512109317358672862012-01-10T20:55:12.060-05:002012-01-10T20:55:12.060-05:00You must keep up your spirits. It&#39;s sometimes all we have left!Customized Mobilityhttp://www.customizedmobility.comnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-51372292686521768232011-07-18T12:26:53.536-04:002011-07-18T12:26:53.536-04:00Hey Marc<br /><br />Really enjoy your blog. Keeping our sense of humor is critical, no doubt!<br /><br />Erika<br /><br />http://erikasmsblog.com/Erikahttp://erikasmsblog.com/noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-83956635019589335442011-06-26T13:16:47.835-04:002011-06-26T13:16:47.835-04:00Oh man, I am so glad to hear I am not the only one to have to fight for a year with the insurance company demons to get my chair. Hello, I have MS – this is not for the “convenience” of struggling to get through non-automated doors or idiots blocking the curb cuts. I have been known to run over some tootsies but only those that deserved it for the ignorance of their owners. There are only so many directions I can go and if you don’t move when I ask you politely I will run into you. I have found it very useful at the office too as I can easily speed off away from annoying co-workers who just want to patronize me. And the freedom it has given me to go out alone without fear of falling like I had with the cane is very liberating. Focusing on the positive aspects of being a speeding green lantern (psyched they made a movie about me now, ha) in my bright green chair has made the transition from the “girl with the cane walking like a drunk” to the “watch out for the girl with the powerful green chair” has made life with MS more interesting or at least tolerable. And to Miss Kimberly, no matter how “handicapped” I get I am not giving up my shoes. And I have been told many times I was being foolish. Well what do I have left sometimes but foolishness? Stay strong sister and remember, if you ever do have to transition to a wheelchair you can wear whatever shoes you want!green latern girlnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-17019238462242550822010-09-02T14:04:02.018-04:002010-09-02T14:04:02.018-04:00Just found this site. I&#39;ve found that once people see you they&#39;re happy to talk to you(probably relieved that you are otherwise &#39;normal&#39;) and many people start up conversations with me cuz I guess the wheelchair lady is less threatening -- if only they knew of my foot-destroying fantasies!lynpnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-25829520443958326522010-04-29T11:41:12.990-04:002010-04-29T11:41:12.990-04:00I thought I was the only one that did that. All my friends at the TV station I work at call me among other stupid things is &quot;speedy&quot;. Much like you I have no time to go slow when my chair goes just about as fast as yours. Sometimes I like going around all the students on the campus that is around my neighborhood. (Marquette) They are so oblivious that they don&#39;t see me until they&#39;re almost in my lap, which in some cases wouldn&#39;t be that bad but I digress. Very funny blog entry I laughed out loud.olando76http://www.blogger.com/profile/01660555057861775801noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-28976818113809089582009-11-21T19:28:14.694-05:002009-11-21T19:28:14.694-05:00Wonderful! A wheelie equivalent of a bikie gang. Here in Queensland Australia bikie gangs are about to be declared illegal. Hey, by act of parliament I&#39;m going to become a wheeled criminal. Oh the benefits of MS.<br /><br />Love the blog, keep it up.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-76531435591679996522009-08-23T15:51:28.816-04:002009-08-23T15:51:28.816-04:00ok. Marc. you skipped the part about having to create your new identity. i know, same guy, new improved package, and i&#39;m asuming here cause that&#39;s what i had to do. only i&#39;m a chick. so. I had to go from high heeled, tight jeaned, prettily smiling, to dumpy old gal in tennis shoes and a chair or what my hair colorists does with my hair is undone by the friggin walker! anyway. i&#39;m handling my image thing now and you have succeeded most excellently in presenting yours. bravo.miss kimberlyhttp://www.blogger.com/profile/05025492941458426884noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-42423661759045390232009-05-04T01:04:00.000-04:002009-05-04T01:04:00.000-04:00Glad you liked it, Marc. Link away.stevehttp://www.blogger.com/profile/18134766859291227041noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-62141710973289320852009-05-03T21:56:00.000-04:002009-05-03T21:56:00.000-04:00Steve, great video! Would you mind if I posted a link to it on this site?<br /><br />Marie, thank you, my dear. I'd like to redeem my suffering for a couple of decades of good health, though. I was thinking I might be able to score some good Mets tickets using the "handicapped" gambit. I'll have to check on that...<br /><br />leela, keep in mind you're getting a very polished version of the picture. There are days that I have neither heart, energy, or courage. But I try my best to keep them at a minimum...The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-53558100991701604862009-05-03T16:26:00.000-04:002009-05-03T16:26:00.000-04:00I just saw this entry. Man, I wish I had your heart and your energy and your courage!<br /><br />Not to mention your writing ability.leelahttp://www.blogger.com/profile/02354422848590890668noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-65907310081026391922009-05-03T14:12:00.000-04:002009-05-03T14:12:00.000-04:00Marc, I've said it before but I am compelled to say it again: it kills me that you have this. However, you are doing SUCH good with your talents, there is almost a redeeming side to your suffering. But just almost.<br /><br />Anyhow, what I really was going to say was there is yet another perk to having to use a wheelchair, as I do for any distance now. No one could get Bruce tickets. But I got them for the handicapped section. Woo hoo.Mariehttp://www.blogger.com/profile/10106720865034468249noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-5305219067157087112009-05-02T20:28:00.000-04:002009-05-02T20:28:00.000-04:00BR and I just put up a ride down Bourbon Street at http://spinfortunaswheel.blogspot.com/2009/04/sights-and-sounds-of-bourbon-street.html.stevehttp://www.blogger.com/profile/18134766859291227041noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-22962984125632393512009-05-02T18:26:00.000-04:002009-05-02T18:26:00.000-04:00Anita, yes it's very important to feel that we're not going through this alone. I can't imagine how lonely suffering from this disease must've been in the days before the Internet...<br /><br />chem, I'm sorry you've been feeling down. Without a little levity things would be almost impossible to get through. I think you just have to appreciate the absurdity of it all...<br /><br />Manju, thanks for the kind words. As I'm sure you know, maintaining a positive attitude requires lots of hard work. Happiness is a choice we make millions of times a day...<br /><br />Melinda, I know that making the step to wheelchair use is a hard one. Just try to remember that it will actually be a positive in your life, and will make things so much easier...<br /><br />Tracy, I have a quantum Q6000Z. I'll take some pictures of my camera set up, and post them along with links to where to get the gear within the next few days. Thanks for giving me the idea. If you wind up making some videos, please let me know. I'd love to provide links to them on this site...The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-31523556378062931252009-05-02T12:57:00.000-04:002009-05-02T12:57:00.000-04:00Hey Marc what kind of chair do you have? Can you take picture of your chair and show how you mounted camera on it. I would like to do this too and share with everyone. Your blog is great love the videos. <br /><br />Thanks<br />Tracy (I am a male people get confused with name)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-56164138784387805392009-05-02T09:46:00.000-04:002009-05-02T09:46:00.000-04:00How well you articulate what I am feeling -- but you add humor and it becomes so much better! As a PPMS person on the brink of wheelchair use, I appreciate you making this step doable. Thanks. MelindaMelindahttp://www.blogger.com/profile/04059069463814983523noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-30275205710976855362009-05-02T01:54:00.000-04:002009-05-02T01:54:00.000-04:00Marc,<br /><br />I love your attitude! It's an asset at any stage of this disease!manjuhttp://www.blogger.com/profile/15470194805146456892noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-39135965382901682792009-05-01T22:38:00.000-04:002009-05-01T22:38:00.000-04:00Marc,<br /><br />Levity is necessary.<br /><br />Been down lately. <br /><br />Your blog helps.<br /><br />ChemdocAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-39224399096167908402009-05-01T19:32:00.000-04:002009-05-01T19:32:00.000-04:00Thanks again. Never ceases to amaze me that you say just what I am thinking-in a much more clever funny way of course. Again it is nice to know that "we" (people with MS or other illnesses) are not out there taking this monumental steps alone!Anitahttp://www.blogger.com/profile/10452652026672510717noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-86689536718713643902009-05-01T02:09:00.000-04:002009-05-01T02:09:00.000-04:00Thanks, Centennial, I'm glad I could make you laugh.<br /><br />Kicker, I love the idea of crazed wheelchair gangs terrorizing the country. We could be the Hells Angels of wheelchair users...<br /><br />Florida, thanks for the applause. A good sense of humor is vital in making it through the day...<br /><br />Shannon, I'm glad you found my blog. I'll go check out yours...<br /><br />Marc, I can't believe I have a doppelgänger out there on the streets of New York. If we ever come face to face, it could mean the end of the universe, like matter meeting antimatter...The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-17202093903073061442009-04-30T14:17:00.000-04:002009-04-30T14:17:00.000-04:00Marc,<br />First time reading your blog. Wow! Amazingly (or not), this sounds like my story, more or less. I'll definitely come back for more.<br />Thanks a million!<br />Marc in NYC (really)Marc Fentonnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-81379265442956469202009-04-29T12:41:00.000-04:002009-04-29T12:41:00.000-04:00I just discovered your blog... and I'm so glad I did. You are hilarious!<br /><br />Shannon@wheelchairrevolution.blogspot.comShannonhttp://www.blogger.com/profile/02464489197254480767noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-69930383890610967662009-04-29T11:55:00.000-04:002009-04-29T11:55:00.000-04:00Marc,<br />As usual your wit get you through the most daunting of situations. Again, I applaud you.Florida Leftiehttp://www.blogger.com/profile/17257315531027168308noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-66111571851978205052009-04-29T08:48:00.000-04:002009-04-29T08:48:00.000-04:00kicker<br />Marc,<br />You know you're just encouraging such behavior and soon will have a gang of crazed wheelchairers across the country. The Wheelchair Liberation Gang. You'll get your own file in the CIA.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-6106563557100083012009-04-29T03:21:00.000-04:002009-04-29T03:21:00.000-04:00Giggles... you're just too much!centennielhttp://www.blogger.com/profile/16897312065662144491noreply@blogger.com