tag:blogger.com,1999:blog-3605254543761446258.post2726884594700940768..comments2009-09-12T06:48:24.219-04:00The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-3605254543761446258.post-8026540880286304482009-09-12T06:48:24.219-04:002009-09-12T06:48:24.219-04:00The first paragraph is positively poetic.<br /><br />Your description of the MS bag of tricks is spot-on.<br /><br />I used to enjoy ice cream, especially at night. Now it wreaks the same havoc, although no doctors will confirm the connection.Linda - Nickers and Inkhttp://www.blogger.com/profile/14891624164014505323noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-89572612551626291452009-09-11T13:25:58.859-04:002009-09-11T13:25:58.859-04:00ok--you and mitch are really inspiring me to blog--the hardest part is where to start. It took a month to post the first blog--today--because I couldn&#39;t decide where to start---then I read your blog--(great reading by the way) and thought &quot;just START&quot;. So now I have...trippingtales.blogspot.com...Meredyhttp://www.blogger.com/profile/14498208663103949318noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-65896292219641647872009-09-11T02:43:37.218-04:002009-09-11T02:43:37.218-04:00Webster-thanks for the kind thoughts. Yes, I&#39;m pretty sure it was a cigar. I think I inhaled some of the smoke through my nose, while I was futzing with my camera. Since I only have one useful arm, that meant keeping the cigar clenched in my mouth, which probably wasn&#39;t a good idea...<br /><br />suejan-thanks for all the advice. I&#39;d love to take a nip of brandy to put me to sleep, but I find that alcohol just messes with my MS too much. You&#39;re right about MS hitting women in more numbers than men, but PPMS actually strikes men and women in equal numbers. If you&#39;re having trouble blogging, try the Microsoft Live Writer program, which you can download free from the Internet. It does all the HTML coding for you...<br /><br />Herrad-thanks for the nice words, I&#39;m in total agreement with you. MS should be banished to some faraway galaxy. And given a swift kick in the ass on its way out the door...<br /><br />Centennial-yes, I thinks it&#39;s the little pleasures that I miss the most. Like being able to drink a nice cup of tea without having to dash to the bathroom within five minutes after finishing it. I used to smoke a pipe occasionally, but it&#39;s kind of a pain having to always refill the bowl and relight the thing. The flavor is wonderful, though...<br /><br />enjoying-Mitch, I&#39;m not sure where you learned your math, but I like the results. If continual losing eventually results in a big win, I guess the Mets are due for a World Series championship...<br /><br />sloth-it&#39;s wonderful to know that people are appreciating my drivel, and that someway, somehow, I might actually be helping people. There&#39;s really no better gift in the world. Thank you...<br /><br />Sloth-I use a Canon SX10 IS. I have it mounted to my wheelchair with a Gorillapod. If you look at my post &quot;kamikaze camera set up&quot;, you&#39;ll see my rig.<br /><br />Kicker-I do the exact same thing with wine and company. I&#39;ll take a sip now and then just for the taste, but alcohol seems to really knock me on my butt these days. Damned disease...<br /><br />haddayr-now you have me craving some good scotch. I might have to &quot;damn the torpedoes&quot; and have myself a good stiff drink...The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-5902590189521457592009-09-08T15:50:19.717-04:002009-09-08T15:50:19.717-04:00I can&#39;t enjoy a cigar anymore, either.<br /><br />Thank god I can still enjoy a nice single malt scotch.haddayrhttp://haddayr.livejournal.com/noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-31043241584918890542009-09-08T07:56:19.684-04:002009-09-08T07:56:19.684-04:00Once in awhile I want to sit and sip red wine. MS has turned me into a really cheap and useless date. Half a glass sends me to bed to sleep it off. When we have company, I have water and wine next to me and know just to sip wine as show, but drink my water really. I never did smoke cigars though.Shoot, sometimes I can hardly stand the smell of old coffee!!<br />kickerAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-20791887728988120602009-09-08T02:10:55.182-04:002009-09-08T02:10:55.182-04:00PS; your photography is really great to see its awesome work. What kind of camera are your stills shot with anyway? I love photography find it harder tho&#39; as my tremor picks up and my balance is off, too lazy to drag out a tripod since I sorta am a walking one LOL.<br />Thanks again...been reading old posts of yours they really touch my heart and brain.<br /><br />sloth/rowboatAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-78382623096477781932009-09-08T01:59:27.889-04:002009-09-08T01:59:27.889-04:00Marc Im really appreciating your blog, its superbly done!<br />Thank you for saying what needs to be said what yearns to be said, and to often is not, you do it with a wit and candor that is a gift to many of us. The videos are awesome and your life is touching many of us who feel without a voice.<br />Thank you!!! (sloth-aka: row boat on the forums)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-64590248160341129582009-09-07T10:58:32.270-04:002009-09-07T10:58:32.270-04:00Bad news- MS kicked your ass again (minus 10 points)<br /><br />Good news- you captured it for us in another outstanding blog post (plus 2 points)<br /><br />So if each time MS kicks your ass you have a net loss of 8 points that is not good, but I bet you could make it up on volume and eventually come out ahead.Enjoying the Ridehttp://www.blogger.com/profile/05043136383875458616noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-29206924719721170542009-09-06T14:55:27.979-04:002009-09-06T14:55:27.979-04:00I hear you, buddy. <br /><br />Too bad how the smallest of pleasures can suddenly become our worst nightmare... provided one can get to sleep at all. Thanks a lot, MS!<br /><br />And speaking of small pleasures and the occasional appetites you crave, hey... if Karen isn&#39;t complaining, I&#39;m not complaining. <br /><br />By the way, do you like pipes? I do... that is, I like men who do, :) although pipe smoking seems to be a thing of the past these days. Pity.<br /><br />I hope today is a feel good day for you!centennielhttp://www.blogger.com/profile/16897312065662144491noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-48739823516407397102009-09-06T09:49:55.722-04:002009-09-06T09:49:55.722-04:00Hi Marc,<br />Sorry to read about how the ms reacted to the cigar.<br />This shitty disease takes everything I think we should banish it foreover to the planet the baddies in Superman we re sent to.<br />Hope you have a good day.<br />Love,<br />HerradHerradhttp://www.blogger.com/profile/13728207969811635579noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-71131396607724617462009-09-06T08:39:45.334-04:002009-09-06T08:39:45.334-04:00Read your blog-unusual to have a man with MS seems to be a female thing.I&#39;m in today asit&#39;s so cold out there-not a September.Byway I&#39;m in England. Had MS since 27-got worse last few years so now have to use electric scooter and use carers. I use scooter asneed room for shopping-called my ferrari-I call it my Stavros machine as its my legs[Stavros ruler of Dalecks]<br /><br />I have bedthat goes up and swear by my memory mattress and many hand held massagers.<br /><br />If I can&#39;t sleep I have a swig of brandy.<br /><br />Now flip flow cathetrised so have to drink a lot to avoid headaches-water sees best-If I do get take Anadin Extra and seems to work. Read coffe and feverfew are good so have every night.<br /><br />Hope this is useful. Done blog but need help to get http labels-last chap was useless so got to looksuejanhttp://www.blogger.com/profile/06984149384432410541noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-10802732524140898712009-09-06T07:27:38.613-04:002009-09-06T07:27:38.613-04:00Whoa, I&#39;m really sorry about the insomnia and the whopping migraine, Marc. Sleep has never been one of my problems; Let me rephrase that. Getting to sleep has never been one of my problems, but Getting on a &quot;normal&quot; schedule, however, still eludes me. Note that I am awake at 4:20 a.m.!<br /><br />I have been fortunate to have had just three migraines, ever. One was after a myelogram, and two were post Solumedrol treatment (luck of the draw there). They sure can knock you down. <br /><br />Are you sure it was the cigar that was the culprit? I assume you have smoked before with no problem. What else might have been the cause?<br /><br />In any case, I&#39;m glad you got some much needed sleep and are feeling better. And I know what you mean by no longer being able to just get up and go. Those days are long gone for me, too.Websterhttp://www.blogger.com/profile/13518858062969978457noreply@blogger.com