Comments on Wheelchair Kamikaze: Is MS Actually A Vascular Disease?

This blog is a welcome breath of fresh air and alt...

2010-05-30T07:15:40.136-04:00

This blog is a welcome breath of fresh air and although I was diagnosed 28 years ago, I see plenty of parallels.

I am always had a problem with my diagnosis. Yes, I could see the doctor's logic in coming to that conclusion and although I half expected it, it just wasn't right, somehow. Functionally quadriplegic but fully functioning above the neck, yet still having total sensory feedback from all quarters -- it didn't make sense. Even worse and particularly frustrating was a neurologist who smilingly informed me that I was "as unique a case as I have ever seen". In other words, I didn't tick all the boxes.

Okay, cut to the chase: about five years ago I was hospitalised with pericarditis which took a while to identify as the cause of my grief. The blood tests produced a surprise for me. It turned out I had "sticky blood", the treatment for which was either warfarin daily or one low dosage aspirin daily. No contest -- aspirin for me. And then, I heard about Hughes Syndrome. Look it up: identified in 1983, one possible consequence of sticky blood is that some leakage can occur in the spine, where the myelin sheath is attacked. This can result in problems with the motor system, producing symptoms "which may be misdiagnosed as multiple sclerosis".

The treatment for Hughes? Aspirin! Since I began the aspirin, my condition has hardly changed. However, it may yet be a few years before I'm running again!

I BELIEVE THE CCSVI PROTOCOL HAS GREAT MERIT. THE...

2010-04-04T23:53:55.240-04:00

I BELIEVE THE CCSVI PROTOCOL HAS GREAT MERIT. THERE ARE TWO OBSTACLES:
1.DRUG CO'S ARE THREATENED
2.DEATHS DUE TO POOR STENT PROCEDURES CREATED
BAD PR.

HOWEVER, I STILL BELIEVE THIS IS THE MOST PROMISING DIRECTION.

Dear F - South Africa, We eased my wife's MS pain...

2010-02-05T23:17:58.275-05:00

Dear F - South Africa,

We eased my wife's MS pain with regular morphine sulfate (oral, actually by gastric tube) and helped her mood with Prozac.

"Better living through chemistry," until we find something better.

Dear F South Africa, is there a medical practition...

2010-02-04T09:28:34.177-05:00

Dear F South Africa, is there a medical practitioner in SA you know of who carries out the CCSVI treatment?

Steve UK

Seven years after being diagnosed my wife's life i...

2010-02-01T07:02:57.267-05:00

Seven years after being diagnosed my wife's life is slipping away , she lives with constant pain , struggles to swallow , can hardly walk even with assistance . The current line of drugs have no effect . We need a breakthrough here.
It is a killer , just slowly .
F - South Africa

My wife has had MS since childhood, but diagnosed ...

2010-01-20T23:17:50.381-05:00

My wife has had MS since childhood, but diagnosed only 25 years ago when she was 40.
We have followed the progress of MS treatments and even tried Betaseron until her white blood cell count became too low. She is now quadriplegic, on a ventilator, fed through a PEG tube.

The different "kinds" of MS may reflect different causes / illnesses, rather than just different progression patterns. Remissions occur frequently enough to convince some that what they did / took recently helped cure them.
Belief and the placebo effect also play a role in making it difficult to determine what is a cure and what is not.

If there were a simple and inexpensive way to cure MS, we would know it, even if no one stood to make a profit from it. When it is found, the word will get out.

Few of you would work long hours for nothing, and it is not a bad thing that scientists and investors hope to get paid, too. Most of them would like to see MS cured, as they would have succeeded, and they could move on to other things.

Months ago "Bridgitt" told us how wonderful she felt soon after the CCSVI operation. Where is she now? As with bee venom and special diets, we are not learning of long-term cures and successful double-blind experiments.

I have some hope that adult stem cells will produce some useful results, but even here I note that we get initial enthusiastism followed by silence months later.

A guarded optimism seems most appropriate.

WHY DO YOU SAY MS KILLS, DO YOU KNOW SOMETHING I D...

2010-01-20T19:53:46.407-05:00

WHY DO YOU SAY MS KILLS, DO YOU KNOW SOMETHING I DON'T!!!

MS does kill

2010-01-20T01:22:08.868-05:00

MS does kill

MS is money making for doctors and MS societys the...

2010-01-20T01:20:59.707-05:00

MS is money making for doctors and MS societys the cure they dont want any of us to have

Hi, my name is Marc. The Virginia Mason Clinic in ...

2009-12-29T04:27:31.780-05:00

Hi, my name is Marc. The Virginia Mason Clinic in Seattle treated my MS since it was dicovered some 15 yrs. ago. The department of neurology experimented with me for years with Avonex, Ribif and then with Novantrone, all to no avail. Virginia Mason ripped me off in excess of $100,000. With no positive results from the clinic, I finally decided to obtain an opinion from a neurologist at the Mayo Clinic. The good doctor sadly shook his head when he listened to my story. "To be brutally honest", he confided, "there is no successful treatment, as yet, for MS. All the money you spent on medications and doctors' visits was to support the medical industry, nothing else. Continue taking Tegretol to relieve your headaches. Otherwise, live a healthy life as best you can. MS is not a killer desease." (paraphrased).

Hi,my name is dave.I have been living with MS for ...

2009-12-10T12:31:06.715-05:00

Hi,my name is dave.I have been living with MS for almost 20 years now.I agree with the comment that healthcare is tied in with the we don't want a cure drug companys.does anyone know that the drug companys bring in more money than the IRS at tax time each year,it's true! think about it,is it better to find cures for illness?
sad but true, take care

Response from MS society to CCSVI? Where is it ?...

2009-11-30T09:08:23.976-05:00

Response from MS society to CCSVI?

Where is it ? Other than the "wait and see", they are scared of going out of business. That is thier goal isn't it?
This would mean there is a solution and the donations from the drug companies would not be needed.

This, along with LDN, should be covered and supported by the networks. But it's not!
Action talks..Where is Obama healthcare? This solution would enable more people to generate tax revenue and and ease the pressure of expensive drugs on insurance companies.

I so agree when people are saying that the MS Soci...

2009-11-28T14:35:18.121-05:00

I so agree when people are saying that the MS Society does not want people to try the new Liberation Treatment. All the drug companies want is our money like I mean come on people give us our life back.

My wife has had MS for 40. We have been using alte...

2009-11-25T19:55:13.308-05:00

My wife has had MS for 40. We have been using alternative methods for years with some succes. Apparently the MS Society frowns on this amazing and relatively simple procedure and is advising against it. They instead should be funding research for these doctors and see how far they can go with this. After watching for 40 years I am convinced that the MS Society is in bed with the drug companies and will do anything to stop any doctor who would try something new or alternative. It is nothing but a big money industry with nothing to do with curing the patients.

hi my name is sandra blyth my little boy sam has m...

2009-11-25T12:43:26.480-05:00

hi my name is sandra blyth my little boy sam has ms sam is 6 years old,sam was diagnosed with ms this august when he was 5...we live in scotland..im excited about this news..it sadly has not made any headlines here in scotland my email address is sandrablyth@live.com if anyone wants to contact me.

I AM A CANADIAN IN CHESTERMERE ALBERTA WITH MS FOR...

2009-11-22T21:59:05.072-05:00

I AM A CANADIAN IN CHESTERMERE ALBERTA WITH MS FOR 23 YEARS THANK GOODNESS FOR DR. ZAMBONI'S THINKING OUTSIDE OF THE BOX HE DESERVE A PRIZE. VAL M

Big Parma is going to be very angry that a rather ...

2009-11-21T20:06:08.069-05:00

Big Parma is going to be very angry that a rather simple medical procedure can basically cure MS.
There goes their billions of dollars in toxic drugs that they sell to poor individuals struck with MS.
God bless Dr. Zamboni and his vision to see above and beyond what others didn't recognize.
We need more radical researches who are couragious to go against accepted trends.

Does anyone have contact information for Dr Drake ...

2009-11-21T11:36:59.998-05:00

Does anyone have contact information for Dr Drake or Dr Zivadinvo? I couple recent articles state they are looking to recruit people in Canada and the US.

Thanks!

Lisa

Hi Bridgett, I would like to know about cost of t...

2009-09-19T13:12:01.980-04:00

Hi Bridgett,

I would like to know about cost of this surgery/ treatment for a person who is not US citizen and what is the process to get this planned and scheduling with Dr. Dake.

Thanks & Regards

MAnoj

I also have ms at now and only 38,I WORK AS NURSE ...

2009-08-02T21:22:15.458-04:00

I also have ms at now and only 38,I WORK AS NURSE IN THE OR,IT IS AMAZING HOW WELL I FEEL AFTER DR.DAKE PUT MY STENT IN TWO WEEKS AGO.I HAVE SOOOOO MUCH ENERGY,AND NO MORE HEADACHES.EVERYONE WITH MS SHOULD GET THIS IT WORKS.I FEEL GREAT. THANKS TO DR.DAKE . BRIDGETT

Anonymous: if you follow the link in the above pos...

2009-07-09T23:28:44.404-04:00

Anonymous: if you follow the link in the above post, it will take you to thisisMS.com, where there is a forum devoted to this theory. It's a terrific resource on all of the research that's been done, and there are personal accounts of several MS patients who have recently undergone surgery to correct their vascular abnormalities. Just click on the sentence that begins "Here is a link to..."

Hello Marc, A colleague and I just stumbled across...

2009-07-09T13:19:19.408-04:00

Hello Marc, A colleague and I just stumbled across your blog and our lives are deeply affected by ms. I was wondering how you heard of this research or how Dr Dake heard of the research taking place with this Dr Zamboni?

sorry i dont buy into your thinking that ms is vas...

2009-07-06T07:10:41.258-04:00

sorry i dont buy into your thinking that ms is vascular disease. I was tested for vascular disease and found i dont have it but do have ms disease.

Was just thinking...suppressing the immune system ...

2009-05-20T17:20:13.734-04:00

Was just thinking...suppressing the immune system with the TNF inhibitors actually causes MS for some people. I don't know why.

This is fascinating. I have spinal arthritis with...

2009-05-20T17:17:54.742-04:00

This is fascinating. I have spinal arthritis with a host of other confusing diagnoses and don't really want to suppress my immune system as a "cure." I wonder then if MS would belong to the realm of autonomic illnesses.