tag:blogger.com,1999:blog-3605254543761446258.post5283924269318194316..comments2010-11-17T01:31:20.604-05:00The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-3605254543761446258.post-61005332768949684642010-11-17T01:31:20.604-05:002010-11-17T01:31:20.604-05:00I keep seeing you in that picture with the accordian (?) . Is there a U Tube video with music somewhere? I have found that Folk Metal is a genre that appeals to me, just now. Lots of hurdy gurdies and acordian and violins and cellos interesting percussion great vocals in languages I don&#39;t know. Music and funny stuff get me through the days and nights. My sons are all musicians.<br /><br />Have you thought about Noetic?<br /><br />Thank you for all that you have done<br />Ye Olde&#39; Swamp GrannyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-56013904579894497442009-06-30T20:52:50.635-04:002009-06-30T20:52:50.635-04:00Hi Marc<br /><br />Very nice writing,Marc . I got to your blog doing a search on Domancic Bioenergy Method and is interesting to see that Stephanie put a comment about the Bioenergy healing event in LA in July. It is interesting because I will be there participating as one of the therapists, and I would like to know if you will get a chance to come to LA for the event?<br />The other thing that I would like to let you know is that at the end of July, I will open the first NYC Bioenergy Healing Center ( the same method that is being offered in LA), that offers effective and low cost treatments for chronic conditions like the one you experience.<br />You can find more info on my site www.bioenergycenternyc.com also you can write to me if interested or with questions at info@bioenergycenternyc.com<br />I hope you can take some time and investigate this modality, it has proven and documented scientific and medical results, it is not some kind of new age therapy, but little is know about it in US.<br /><br />Hope to hear from you soon.<br /><br />AlexAlexhttp://www.bioenergycenternyc.comnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-68837510883763874212009-06-23T12:53:55.870-04:002009-06-23T12:53:55.870-04:00Hi Marc,<br /><br />When you get your MS cured can you widen the cicrle to include everyone else too.<br /><br />Still catch myself wishing it would all go away.<br /><br />Then wake up with my arms clamped and frozen in place and realise again there is nbo escape even for good behaviour.<br /><br />Love,<br />HerradHerradhttp://www.blogger.com/profile/13728207969811635579noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-29858398689748651992009-06-21T18:47:35.184-04:002009-06-21T18:47:35.184-04:00Hi Marc,<br />Come to LA and give Bioenergy therapy a try.<br />July 13-16 there is free event to document the beneficial effects of Bioenergy therapy ( the Domancic Method ) on MS - This is the first of it&#39;s kind in the US - and is a non profit event to help people with MS and Parkinson&#39;s - the proof is in the results - here is the website - <br />www.bioenergylifeproject.comStephaniehttp://www.bioenergylifeproject.comnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-38051652534677304092009-06-08T02:35:39.381-04:002009-06-08T02:35:39.381-04:00Oops, sorry - forgot to say Please come by to pick it up. It&#39;s waiting for you.Websterhttp://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-42361577674590846562009-06-08T02:34:15.636-04:002009-06-08T02:34:15.636-04:00Hi Marc, Another good post from you; it is thought provoking. For this reason and for your lovely Kamikazi videos, I am awarding you the &quot;My Wonderful Favourite&quot; blogger award.Websterhttp://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-75797543858014075732009-06-06T05:56:47.513-04:002009-06-06T05:56:47.513-04:00Personal opinion you gave up too easy look deeper your independent spirit could pull you out yet but you have to be open and willing to give it everything you have. Even if this is the time of the emergence of the autoimmune phenomina, look deeper. Autoimmune diseases have recently reached epidemic numbers of 1 in 4 people will have an autoimmune disease, this is a health disaster. We need to step aside and have a clear look at where we are being taken, there are other choices. The world of health is not one dimensional as modern medicine would like you the think it is. Autoimmune diseases are both perplexing and mysterious to say the least; there are approximately 80 to 100 with another 40 waiting for a name and if you get one you will get another and so on. Medical science who has not cured a disease in 60 years, cannot explain why we have this autoimmune epidemic or why you have even one of these diseases. You can trigger one of them just by having an auto accident, taking aspirin or medication or by starting a new exercise routine; even too much stress says latest research. Naturopathic medicine says, “Look for the root, it is in the basics beginning with what is on your fork, what toxins are in your body, what exercise do you do, what stress is in your life, what is your spiritual base”. Scientific arrogance has led us down the wrong path we better stop and take a close look at what is happening. This month 150 new chemicals will be added to the 85,000 in the environment which are part of the autoimmune problem. They will be added too industry with no oversight control at all. A world upside down. God bless you in your search.<br />Sincerely<br />Paulherbprofhttp://www.blogger.com/profile/12410891834388181134noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-54770794822610092852009-06-05T14:31:05.884-04:002009-06-05T14:31:05.884-04:00Marc,<br /><br />Your best post yet. Keep them coming. <br /><br />MitchAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-86800468650099660952009-06-04T21:54:51.159-04:002009-06-04T21:54:51.159-04:00Another video soon, I hope!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-72767448583650118582009-06-04T00:06:50.570-04:002009-06-04T00:06:50.570-04:00Hi, Marc,<br /><br />I posted a comment here yesterday- but it seems to have disappeared now!<br /><br />Anyway, wonderful post, one of your best! Very thought-provoking.manjuhttp://www.blogger.com/profile/15470194805146456892noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-19279630467136251982009-06-03T19:38:16.856-04:002009-06-03T19:38:16.856-04:00Mark..I forward your blog on to several people who are fighting for their lives. I always get such great feedback.<br /><br />You take &#39;what is&#39;, put YOUR spin on things and inspire everyone lucky enough to read your words. <br /> <br />Sometimes we get what we want in a strange form. Thanks for telling it &#39;like it is&#39;..<br /><br />Here&#39;s to staying up all night and sleeping till noon...clink...<br />JstlooknAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-65778738393008607362009-06-03T18:51:11.925-04:002009-06-03T18:51:11.925-04:00I was a rockstar (okay, not &#39;star&#39;, not even close, but I was on TV). I am a <a href="http://www.nicolagriffith.com/novels.html" rel="nofollow">novelist</a>. I have MS. My life is so not what I expected in my Wild Yoof, not even close. But life is good--hard, sometimes, strange and beautiful at other times, just plain ordinary upon occasion. But, hey, it absolutely beats the alternative.<br /><br />I enjoy your blog. (I get so tired of the happy cripple crap, the hearts and flowers crew who, like pornography, seem to take over the web discussion of MS.) Thank you.nicolahttp://www.blogger.com/profile/00401940329164370169noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-61296857350388422862009-06-03T18:32:07.325-04:002009-06-03T18:32:07.325-04:00Centennial: faith can take many forms, some of which I have, and some of which I don&#39;t. But you&#39;re right, it is very important to have faith in something...<br /><br />Stuart: Thanks. For any readers out there looking for a good source of information on MS, I heartily endorse Stuart&#39;s website.<br /><br />Mary: thank you for the lovely words. Sounds like you do your part in helping those in need, even while battling your own hardships. I find that it&#39;s therapeutic to feel like you&#39;re helping someone else.<br /><br />Kicker: I guess Peter pan will never get MS...<br /><br />anonymous: you&#39;ve traveled a very rough road. The only way out is through, though, and you seem to be the kind of person who won&#39;t give up the fight. Keep battling, no matter what the odds...<br /><br />Camille: thanks, I would love to write a book. Who knows, maybe this blog will someday become a book, if anybody would care to publish it...<br /><br />wonlife: I posted a full description of my camera rig, complete with photos, earlier in the blog. Here&#39;s the URL: http://www.wheelchairkamikaze.com/2009/05/kamikaze-camera-set-up.html<br /><br />Tracy: good luck to you, too, and your battles with the devil in the details...The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-21204269430267147732009-06-03T18:18:38.282-04:002009-06-03T18:18:38.282-04:00Marc, I too have MS and I understand very well the devil and the details... Good luck my friend.<br />TracyTracyhttp://www.goibot.com/noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-14946542388943062612009-06-03T16:36:53.691-04:002009-06-03T16:36:53.691-04:00i forgot to ask - i&#39;d love to see your rig - chair with camera. please post some pix!wonlifehttp://wonlife.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-61387767899649558502009-06-03T16:31:59.932-04:002009-06-03T16:31:59.932-04:00i love the idea of a chair mounted camera. i am a photographer, dx with ms in 03, nearing wheelchair time. i&#39;ve often thought about continuing my street photography from a chair - nice to see it&#39;s already being done, and done so well. thanks for sharing.wonlifehttp://wonlife.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-59322512375929412892009-06-03T13:28:42.810-04:002009-06-03T13:28:42.810-04:00I love to read your writings. Maybe you can do a book, i would definatly read.....<br /><br />take care,<br />camilleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-75044035523923655022009-06-03T12:37:11.930-04:002009-06-03T12:37:11.930-04:00Hi Marc,<br />It is amazing how much we take for granted when we are able bodied people. I was diagnosed with muscular dystrophy at the age of 31. Didn’t think much of it at the time still able to play basketball, racquetball and even able to walk up a flight of stairs without even thinking a thing about what it takes to go up them. Like MS this is a slow progressing disease. Soon I noticed things going wrong getting out of a car, going up stairs, standing from a chair all seemed to get harder to do. Then our daughter at the age of 7 was diagnosed with brain cancer. Long story short she is a cancer survivor at the age of 17 and is doing well. As you can imagine this time period took a lot out of us physically and mentally. I found my MD progressing quickly. I was hit with a stroke directly due to the MD with this my body couldn’t function very well. So the hard decision of going on disability became real. After working from the age of 14 to the age of 45 it was over not be able to work as I am sure you know it is a real blow to your self worth. Then the fight begins with Social Security, Insurance on and on. I could ramble on for awhile but, even though our disease isn’t the same I want you to know I share the same frustrations, anger and never ending mental and physical challenges of just living day to day. Thanks for your blog I always look forward to seeing your views and videos. <br />TracyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-58676304407750762722009-06-03T10:52:11.707-04:002009-06-03T10:52:11.707-04:00See, you become on of the grown-ups and get MS. There must be a correlation!!<br />kickerAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-7825245342898694882009-06-03T09:03:59.802-04:002009-06-03T09:03:59.802-04:00Here I am at work, addicted to your blog and Lisa Emrich&#39;s blog and my own blogging helping me get through the day. I dreamed of being a famous writer and staying at home in my wonderful back yard writing like Robert Frost.Instead I am fearing the day when that&#39;s where I sit while the able bodied go off to work.<br />Meanwhile I coordinate long term care services and try to encourage those with more advanced disease to get help and make the most of their lives. I give myself shots and go to he clinic where they experiment on me nicely and I pray this is the cure. Marc, do not doubt your readership appreciates you chronicals of your life&#39;s challenges and the obvious love of your wonderful wife. She is your greatest gift.<br />Many more read your blog than comment and by helping one comrade (even myself) with MS, you help us all. Best wishes.Mary GerdtTravelogue for the Universehttp://www.blogger.com/profile/01127086480471321349noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-23205160777136127342009-06-03T08:26:35.642-04:002009-06-03T08:26:35.642-04:00Marc - Very Well Written !!<br />=============================<br />Learn more of Multiple Sclerosis when registered at: <a rel="nofollow">http://www.msviewsandnews.org</a>. <br /> <br />Once registered, you will receive our weekly ms related e-newsletter, keeping you informed of current MS information. <br /> <br />And when you can, use our MS Blog: <a rel="nofollow">http://wwwmsviewsandrelatednews.blogspot.com</a>/ - to your advantage.<br /> <br />Have questions? write to: <a rel="nofollow">stuart@msviewsandnews.org</a> -<br /> <br />Please don&#39;t forget to inform others whom you know that are affected by MS, of this information.<br /> <br />Thank youStuarthttp://www.blogger.com/profile/14853421273383452873noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-6169609491105349402009-06-02T22:26:54.219-04:002009-06-02T22:26:54.219-04:00Faith is the victory. May you always have faith. ♥centennielhttp://www.blogger.com/profile/16897312065662144491noreply@blogger.com