Comments on Wheelchair Kamikaze: Great Resource for MS News and Info

Hi, We met in Dr. sclafanis office in New York! I...

2010-04-09T09:24:43.402-04:00

Hi,

We met in Dr. sclafanis office in New York! I am Marie Louise from Denmark and was the next in line for the procedure after yours. Do you remember me? I was really scared to have the procedure and you told me that it was'nt so bad. I just want to tell you that your words made a big difference to me:-) Check out my homepage for my expierience with the procedure.

www.123hjemmeside.dk/flowoflife

Looks like we are kinda in the same "juglar" boat....

Stay cool kamikaze;-)

I believe CCSVI is at the root of the problem. I h...

2010-02-11T12:51:00.893-05:00

I believe CCSVI is at the root of the problem. I have PPMS AND HoCM (hypertrophic cardiomyopathy). So do many neurological researchers I've written to.

Right on. "Stu's News is a great resource...

2010-02-11T12:05:43.698-05:00

Right on. "Stu's News is a great resource and I read it religiously....whatever that means. Another favorite source of mine is MS Central (http://www.healthcentral.com/multiple-sclerosis). There you can find great articles or series of articles on very relevant topics about living with MS ranging from clinical trials to wheelchairs.....and your blog seems pretty good too. I am subscribing to that too.

What if the elusive Abominable Snowman is a she? ...

2010-02-11T01:16:31.435-05:00

What if the elusive Abominable Snowman is a she? I suppose her name would be Dot.

THANK YOU for the PLUG, Marc --- Working together ...

2010-02-10T13:42:45.237-05:00

THANK YOU for the PLUG, Marc --- Working together enables that many more, to get the information we both graciously supply...

Keep 'em coming and stay away from yellow snow !!

Obsessions are a good thing. They give those of us...

2010-02-10T12:44:58.989-05:00

Obsessions are a good thing. They give those of us without gainful employment something to get out of bed in the morning for. Or in Marc's case in the afternoon.

Here is a link to the information on CCSVI that ca...

2010-02-10T10:53:01.366-05:00

Here is a link to the information on CCSVI that came out today: http://www.buffalo.edu/news/10937

you are not alone in your fedora obsession. I just...

2010-02-10T10:31:14.007-05:00

you are not alone in your fedora obsession. I just wish i could find better ones

pfrox9

It's funny, I don't look for data about MS...

2010-02-10T09:17:16.375-05:00

It's funny, I don't look for data about MS at all. I think I feel very resigned to the possibility that MS will not be cured in my lifetime. Sorry to be such a downer. :(

On the other hand there have been incredible advances in just the past ten years. So maybe I'm being overly pessimistic.

As an aside, I also collect old postcards of NYC and of Asbury Park. Oooh, that just gave me an idea for a blog post. Thanks Marc!

Maybe I am dense...can you explain the last senten...

2010-02-10T07:58:15.291-05:00

Maybe I am dense...can you explain the last sentence to me? Does writing your name in the snow mean something that I dont understand?