Comments on Wheelchair Kamikaze: Buffalo CCSVI Study: Hints of Big News Coming Soon...

I was treated for CCSVI with angioplasty. Blocked...

2010-12-03T01:21:30.308-05:00

I was treated for CCSVI with angioplasty. Blocked jugular. Very routine procedure. I was up and around the next day.

My sister had a congenital AVM - Arteriovenous mal...

2010-02-10T00:20:48.504-05:00

My sister had a congenital AVM - Arteriovenous malformation. It is a malformation where the vein and artery meet. It did not begin to cause neurological symptoms till she was in her early 40s although she had been having severe headaches for many years. Yes, venous malformations can take years before the damage is severe enough to show symptoms. I think CCSVI and MS is the medical breakthrough of the decade. But big pharma and neurologists will not be happy. Rough road ahead.......

Hi everyone, I did a little definition checking ...

2010-02-08T15:51:48.125-05:00

Hi everyone,

I did a little definition checking and found that "congenital", meaning "innate" or "present at birth" is NOT a synonym for "genetic". Researches have long thought there is a genetic component to MS, but it is not absolute. An identical twin with a sibling with MS, stands just a 30% chance of developing the disease. Were MS a genetic disease, that chance would be 100%.

It seems to me that if we all have some congenital abnormality leading to CCSVI, then there needs to be other environmental factors that come into play to trigger the start of the disease. The role that viruses such as Epstein Barr and Vitamen d deficienies play will hopefully come to light as this research progresses.

It is also fascinating that CCSVI research is starting to show that the placement and level of blockage / stenosis can be a predictor of the type and severity of the ms. These elements probably all factor in to the timing of when a person develops ms and whether or not a person actually develops ms at all (Marc, please forgive me if I am repeating something you mentioned in a previous post).

For me, I am just excited to get the first results from the Buffalo study. It's only up from here!

Ann

If this is congenital, a study that should be done...

2010-02-08T11:30:59.374-05:00

If this is congenital, a study that should be done - the children and blood relations of all those with MS.

Right away like when newborn? Kids also are diagno...

2010-02-08T04:58:15.787-05:00

Right away like when newborn? Kids also are diagnosed with ms, adults, elders, whoever, whenever. Especially in stressful times, when trying to get the most out of life, 20-40s something that also correlates with the vascular pattern.
There should be many people with ccsvi that will never be affected by ms since their blood vessels are tougher, their quality of life is better, they dont smoke bla bla bla bla...
All i am trying to say is YES! It is unbelievable that the cause for MS has been obviously found. Can it be cured? We ll see.
But let neutologists be sceptic. All others should be open minded, let the sun shine and believe people.
Zamboni is not an idiot. Neither Buffalo is a small town university. Neither Haacke neither everyone who believes should be taken for a fool.
And a piece of advice: read before talking.

What do you mean right away? It does affect the cn...

2010-02-08T04:32:24.937-05:00

What do you mean right away? It does affect the cns EVENTUALLY and keep acting alike for the years to follow. Do you really think MS starts when diagnosed? I d say it starts many years before ,silently until it reaches the point that one cannot but start noticing that something is seriously wrong.
And as far as it causes CCSVI it is the dummest thing i ve ever heard. People are missing veins, their bones are pinching them or whatever, how on earth an autoimmune disease could be responsible?
The question is what percentage of ms patients have CCSVI. If it s close to 90% like Zamboni says, the next question should be: no stenosis, no MS. What then? Patients go misdiagnosed for years and years and hopefuly Zamboni's research will not only help ms patients but will poor some light in the ms BUCKET.

Um, just because CCSVI may be present before MS, t...

2010-02-07T18:57:19.411-05:00

Um, just because CCSVI may be present before MS, this does not imply it CAUSES it. Why does it not affect the brain right away? Lots of questions still to answer, as Marc rightly points out....

Here's a CTV story about the consensus documen...

2010-02-07T13:57:30.171-05:00

Here's a CTV story about the consensus document from an international meeting of vascular specialists who concluded, unanimously, that CCSVI is congenital. That means CCSVI causes MS not the other way around.

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20100127/ms_treatment_100127/20100127?hub=Health

Georgetown is offering CCSVI imaging and treatment, as a clinical trial to evaluate various liberation techniques as a result.