tag:blogger.com,1999:blog-3605254543761446258.post8371938337846175256..comments2011-05-24T00:37:15.362-04:00The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-3605254543761446258.post-50501988356804410482009-03-26T12:46:00.000-04:002009-03-26T12:46:00.000-04:00I hope you know your invaluable insight is reaching those of us who go to bed taking every future day for granted. JoanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-1279912825590398742009-03-26T01:48:00.000-04:002009-03-26T01:48:00.000-04:00Anonymous: the decision to go on disability is one of the hardest any person can face. At some point, it becomes a question of diminishing returns. When the mere act of going to work is in itself debilitating, it's time to let it go...<BR/><BR/>Stuart: thanks for the kind words. The resources you provide to the MS community are invaluable. Big thanks go out to you...<BR/><BR/>Melinda: I will put together a post on the events that led to my going out on disability. It wasn't as hard a choice for me as it is for many, in some ways my hand was forced...<BR/><BR/>anonymous: there is no way around it, multiple sclerosis takes from us much of what we hold dear. The disease is a felon.<BR/><BR/>creative: you are certainly not alone. I have a pretty low tolerance for the "flowers and rainbows" view of the disease. Multiple sclerosis sucks.<BR/><BR/>Jon: as intelligent as the "next generation"was, the original had Spock getting horny, the Cooms versus the Yangs, and three disembodied brains betting on the outcome of gladiatorial combat. How can you beat that?The Wheelchair Kamikazehttp://www.blogger.com/profile/13897021799119917541noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-16119497071924083722009-03-26T01:30:00.000-04:002009-03-26T01:30:00.000-04:00forget the MS, I want to hear your thoughts on Next Generation vs. the original. I finally gave up on the Trek universe after a few episodes of "Enterprise" - a 30-year commitment to a fictional universe down the drain! But I'm hoping the new prequel will get the juices flowing again. <BR/><BR/>Fascinating/entertaining as always ... can't wait to read the next part. Just heard from my old pal M. Stone and apparently he's watching your videos - Hollywood here you come...<BR/><BR/>holleratcha later,<BR/><BR/>jonjonhttp://www.narrativejunkie.comnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-73971812254682702572009-03-25T17:28:00.000-04:002009-03-25T17:28:00.000-04:00Thank you for saying what I have been trying to say! It's refreshing to be able to say out loud that MS is a beast. I was made to feel guilty recently<BR/>at a website because I *was letting MS win*<BR/>While all of the *I have MS, MS doesn't have me* talk sounds good, it's not real. I will never be the same woman I was before. Not many people understand that, nice to know I am not as alone as I thought.Nothing creative comes to mindhttp://www.blogger.com/profile/01092626333041226949noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-86841795240685542692009-03-25T11:54:00.000-04:002009-03-25T11:54:00.000-04:00How intriguing... yet familiar sounding. Can't wait for Part 2.<BR/>(aka Centenniel)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-42582136155706711342009-03-25T11:41:00.000-04:002009-03-25T11:41:00.000-04:00Before MS and after MS diagnosis. That is how I view my life. As if the diagnosis date was a death of myself and also the birth of the MS persona. I thank you for your perspective.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-56967091422603402132009-03-25T10:26:00.000-04:002009-03-25T10:26:00.000-04:00Stewart is right, you are a very good writer. Thank you so much for developing this blog. I love your videos! Your commentary is priceless.<BR/><BR/>Like Anonymous, I am trying to decide when to go on disability (I have PPMS). I hope you will write and share your experience regarding this decision.<BR/><BR/>MelindaCoffee Personhttp://www.blogger.com/profile/03337460773956191709noreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-25105813437368923772009-03-25T08:49:00.000-04:002009-03-25T08:49:00.000-04:00Marc, - A very good writer you are and so many of those with MS and other diseases can assimilate to your situation, very easily...<BR/>This is why I will again feed others to your site, this blog site. - As I know that with your videos and words, you can help many to feel better in how that must live with their illness.<BR/>Have a great day...<BR/>Stuart<BR/>http://wwwmsviewsandrelatednews.blogspot.com/Stuarthttp://www.msviewsandnews.orgnoreply@blogger.comtag:blogger.com,1999:blog-3605254543761446258.post-53427337979992007362009-03-25T05:44:00.000-04:002009-03-25T05:44:00.000-04:00This narritive is particularly interesting for me, regarding the disability decision. When you get hit by a car or have a stroke or heart attack, the disability decision is not about "when", but just "if". With a progressive disease like MS both When and If come into play. I'm struggling with that decision now. Your insights are welcome. It appears that Blogging and video production are helping to fill you days with constructive activity.Anonymousnoreply@blogger.com