Friday, July 10, 2009

Get Involved! Support Creating a National MS Registry...

18F PET scan shows decreased dopamine activity...Image via Wikipedia

Okay, fellow MS people (and those who love us), here's a chance to have your voices heard by the powers that be in Washington. The National Multiple Sclerosis Society is organizing an e-mail campaign urging the passage of The National MS and Parkinson's Disease Registries Act, which would for the first time establish a national coordinated system to collect and analyze data on multiple sclerosis, Parkinson's disease, and other neurological diseases and disorders.

Believe it or not, the last time a national study on the incidence and prevalence of multiple sclerosis in the United States was conducted was way back in 1975. A lot more than hairstyles and the width of lapels has changed since then, and a new study could shed light on a wide range of issues impacting the research and treatment of our shared enemy, multiple sclerosis.

The NMSS has made it easy to get involved. Simply click on this sentence to navigate to a webpage that they've devoted to the cause, which will allow you, with a few simple clicks of the mouse, to send e-mails in support of this important legislation to your senators and congressmen. While you're at it, you can sign up to become an "MS activist", and become involved in all of the Society's efforts to lobby on behalf of MS patients nationwide.

So, say it loud: I have MS, I'm mad as hell, and I'm not going to take it anymore! Take action and help yourself while you're helping others...

We may be gimpy, but we ain't wimpy...
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  1. Yes, but how much junk mail will they send me after I sign up?

  2. Katja: I've been a member of the NMSS's "MS Activists" for several years now, and my inbox is not overflowing with junk NMSS e-mails...

    Centennial: well, everything the government does costs taxpayers. That doesn't mean that everything that costs taxpayers is bad. My recent trip down to the NIH shows just how beneficial taxpayer funded endeavors can be. Police and fire departments are taxpayer funded, surely you're not against them?

    I, for one, would rather have my taxpayer dollars go to MS research than to training Central American death squads, arming the Taliban, maintaining secret CIA prisons, and warrantless wiretapping. The notion that all government is bad government is a myth, propagated by those who use fear as a method of control. If my government can fund research that may lead to the alleviation of pain and suffering for countless millions, then, please spend away...

  3. The notion that all government is bad government is a myth, propagated by those who use fear as a method of control.


  4. We may be gimpy, but we ain't wimpy...- :D

    Hope your campaign is a great success!

  5. I did it, hope it helps. I'll post it on some of my sites too. Great blog btw.