Unfortunately, this is still Karen reporting on behalf of Marc. Marc's fever is down after he started a course of Cipro (antibiotic). Since nothing is ever simple with Marc, the Cipro is giving him very uncomfortable side effects, mostly causing a racing heartbeat and making him feel very woozy. Overall, he's feeling better since the fever is down, and he's supposed to speak to his doctor tomorrow about switching antibiotics.
Testing has shown that it isn't the use of Methotrexate that made Marc sick. It could be a reaction to the spinal tap, but for now is being classified as a fever of unknown origin, just like in July. Although the doctors don't see a link, Marc and I think its very unusual to have two such episodes so close together. There was no Methotrexate in July and Marc has previously done at least 5 other treatments with the drug with no negative side effects.
Marc is worried that he has the disease that turns people into zombies and he has made me promise to shoot him in the head if he suddenly leaps out of bed intent on eating my brain. Since we don't have a gun, he is also instructing me to apply for the license NY requires to get one. He suggests contacting a relative outside NY to acquire one on the QT. One of us is related to a former mobster (fodder for a future blog post).
I am so sorry to hear that Marc is still so unwell. Cipro makes me feel like crap, but it is one of the few antibiotics I can take.ReplyDelete
Here's hoping the docs can find something that will help.
Thanks for the update Karen.
so sorry to hear that WC is having such nasty stuff happening.
I could not take Cipro after awhile..I developed an allergy to it..it mucked around with my system big time.
Methotrexate does knock the immune sustem down quite a lot with the subsequent drop in white cells which leaves us all vulnerable to internal and external bacteria (our own and others)I hope they are culturing WC's blood when he spikes and his tenmp goes up..that is the time they can grab the "bacterial shower" of whatever he is trying to fend off.
Please give yourself and WC a hug from BC Canada.
Hope you all get some rest. Ciao from Ruth-Ann
I'm sorry you're feeling so lousy, Marc. It's rotten to be so off your game with a fever. Cipro gives me indigestion, but it works. Hopefully the docs will prescribe something that both works and has no side effects.
Thanks for posting. I was think of our Kamikaze yesterday, and hoping all was okay. Stay well. You are in my thoughts, too.
Prayers and wishes for a quick recovery.ReplyDelete
Thanks for the update. Its wall-to-wall worry out her for WK. I hope the doctors begin to understand better what is going on. My heart is with you across the e-waves. Good luck with that plan to acquire weaponry too, I guess.ReplyDelete
Hey Marc,Thinking of you and Karen and sending good thoughts.ReplyDelete
Sending positive thoughts Marc...hang in there. Karen you are truley the best.ReplyDelete
I'm sending you both an email b/c my reply is too long and involved. Hope you have some peace soon...ReplyDelete
Is it possible he has a CSF leak? I have that every single time they go into my spinal cord for a spinal tap, pain pump trial, etc. Last time, even the blood patch didn't work. We had to do some uncommon procedure where they actually GLUED the hole back together to stop the leak! But it worked!ReplyDelete
Hi Marc, sorry to hear you're still having a rough time of it and thanks to Karen for the update....regards JudiReplyDelete
Karen---hang in there. I'm glad to see your dark humor is intact. Maybe a viewing of Zombieland is in order for the weekend (the Bill Murray cameo is worth it.) Give Marc a hug for us-ReplyDelete
J and J
Along my MS journey a test for the bladder (ultrasound) serendipitously picked up that one of my kidneys was non-functional and atrophied. I was told that it was probably a congenital condition.ReplyDelete
Three years later this piece of information saved my life.
I was in in-patient rehab when I spiked a 105F fever. After multiple negative blood cultures the MD finally saw my kidney history in the chart.
He ordered an ultrasound which showed the atrophied kidney to be seriously swollen and infected. (There was no pain or discomfort.)
A nephrostomy drain was inserted and iv antibiotics then controlled the infection.
Take away lesson here -unless you know for a fact that you have 2 functioning kidneys - rule out my type of disfunctional kidney/infection as oral antibiotics will not be effective in controlling the infection.
Damn, Marc, talk about a gift that keeps on giving...nothing is ever simple for you! My daughter says "Stay away from Western medicine"...maybe she's right?? Thinking of you you and hoping you'll feel strong again soon. Enjoy watching your Yankees all weekend...this time it doesn't matter to us Bo Soxers! I can even root for your team...I am that generous!ReplyDelete
Warmest recovery wishes,
Send him our love, Karen.ReplyDelete
Dang--Cipro can be mean stuff--I'm sure the docs won't tell you this but everyone should be taking a probiotic when they are on antibiotics--get a really good one and just feel free to go right ahead and feel better any time!ReplyDelete
Marc, sorry you're still feeling so lousy. You're in my thoughts and prayers,ReplyDelete
Been concerned for both of you. Happy for the update. Time for some "hands over healing". Forget the gun..too messy and Zombies can't be stopped by bullets!ReplyDelete
i'm so glad to see that you and karen have an awesome sense of humor in these difficult times. is there any other way of taking this? i don't think so.
i wish you the best.
PS: i called mayor bloomberg, we agreed he will deny your rifle/shotgun license application (even the out of state ones). we are watching you.
In my experience, it's best NOT to take Cipro on an empty stomach. Get some solid protein down there (like a bean burrito) and drink plenty of liquids. That queasy feeling will go away.ReplyDelete
Maybe guido or the hobo you met in those fancy hospitals can hook you up with a good nine? Sorry about everything -this disease is a mind fu@# as well as a body fu@#!!It is hard to remeber what "normal" felt like...Hang in there.ReplyDelete
We need you. Please get well and keep writing like you do. You are gifted and we need your work.ReplyDelete
Bummer, dude. I hope you are back to your old self very soon.ReplyDelete
Marc- Please get well soon....ReplyDelete
Prayers, good wishes and good karma...whatever it takes, 'eh?
Karen- (((hugs))) hang in there.
Karen, Guns are no good. According to Night of the Living Dead "Burn them or beat them. They go up pretty easy."ReplyDelete
My thoughts and prayers are with you both. Get well soon, Marc! Even though Karen is doing a great job, we want Marc (everybody) WE WANT MARC!ReplyDelete
Marc, I had the same reaction to Cipro. Hopefully the doc will find something that works without the nasty side effects.ReplyDelete
Sorry this is kicking your ass!
Marc & Karen,ReplyDelete
Please add my sympathies and well wishes to your already long list. Don't worry about us, concentrate on getting better.
Dear Marc and Karen,ReplyDelete
Hope Marc feels better soon! You are both inspirational for me. I find that a little damp wash cloth on the forehead does wonders when my Marty had similar side effects to new meds.
I"m so sorry that Marc is still feeling so crappy! I'm sending reiki your way...and just good, friendly healing vibes in general.ReplyDelete
We're praying for your health buddy! You've been a great help and inspiration to the community!
Sorry to hear about your situation Marc. I am just getting caught up on your posts. Hang in there...ReplyDelete
Marc & Karen, sending well wishes to our favorite blogger. Marc is an inspiration to all of us at the Myelin Repair Foundation.ReplyDelete
Do the research on Bartonella or Bartonella Like Organism. This will lead you in the right direction.
Oh Marc and Karen, I am so sorry things are not much better.ReplyDelete
Hang in there, both of you. Lots of good thoughts and healing prayers are being sent your way.
And ditto to above re. NO GUNS!! Too messy anyway and it doesn't actually kill zombies.
Stay as well as you can, my friend.
Maybe thats what zombies are--former MS patients. We do have a stubborn side. BUT..guns dont work on zombies do they? hmmmm maybe a little research is in order (but I would contact your contact just in case)ReplyDelete
Mary Dayton from way ago in Florida here. Found Deb recently and she told me about your illness and your blog. I truly hope you feel better soon and can get back to writing this amazing blog! I loved the videos as well. You always were the smartest person in the room at APT and from reading your blog---you still are! Please take care and I hope you feeling better soon. Prayers and good thoughts! So glad you found an amazing person in Karen!
So sorry to hear about your fever, Marc. It not only takes the wind out of your sails, it pokes holes in your hull. I hope they can get it under control soon.ReplyDelete
In hopes that it may brighten your day, here's a kamikazi-inspired video BR made last year.
I sure hope Marc gets better soon. About the dark humor, why buy a gun and be charged with murder etc., when a Tylenol overdose would be more humane and certainly less messy. That's my backup.ReplyDelete
Great to read your October 9th post. Keep on the sunny side.ReplyDelete
Fiddle a Liddle
Additionally, certain standard wheelchairs can be converted into transport chairs. Buying one of these chairs, such as the Drive Pollywog Wheelchair/Transport Chair, is a great money saver for those who need two different types of wheelchairs.ReplyDelete