Thursday, March 11, 2010

Back Home, Safe and Sound

First of all I'd like to thank everybody who left comments and sent e-mails wishing me their best, offering their support and encouragement. I don't have the words to express how much I appreciate the comfort sent my way, and I am continually astounded that my silly little blog has touched the lives of so many.

I'm back home, safe and sound, after undergoing the CCSVI angioplasty procedure, which lasted longer than I expected, almost 5 1/2 hours, and discovered several abnormalities within my CNS vascular system. I'll detail these abnormalities in a later post, when my own understanding of what was found is more clear.

For now, I'll just say that the abnormalities that were discovered were not able to be fully treated at this time. Dr. Sclafani, who performed the procedure, is going to consult with a variety of experts to determine the best course of action to take moving forward.

As for the procedure itself, it really wasn't painful or even all that that unpleasant, just long and tiring. Not that I'd recommend it for a recreational activity, but the degree of anxiety I felt before the procedure was out of proportion to the actuality of the event.

Again, I'd just like to thank everybody for their wonderful show of support. I will post a detailed explanation of the findings after I consult further with my doctors, and can give an entirely accurate account. I expect I'll be able to do this within the next few days. There is surely enough misinformation on the Internet regarding CCSVI and the procedures used to address it without my adding to the confusion.

Again, thanks everybody...

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26 comments:

  1. Great that you are home-- hope you feel well and see improvements soon! (Thisisms. folks are wondering about you...) prairiegirl

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  2. Welcome back! Glad it was not as bad as you were imagining. Thanks for keeping us in the loop. IT was a big releif to see a new post from you. Get some rest. We'll be here waiting.

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  3. Out-STANDING, big guy! Reeeeally happy it all went well.

    ---Mooseasaurus Rex

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  4. Thanks so much for letting us know that you're o.k. and home now, Marc. We've been checking all the time to hear that comforting news.
    We will await further info whenever you have it. In the meantime, our hearts and thoughts are with you.

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  5. Marc,
    So happy for you that all went well today and that unlike yesterday when you had a disease that wasn't treatable, you now have one that can be treated, however complicated that may turn out to be.

    Sounds as though you will have lots of interesting material to write about going forward.

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  6. Marc,
    believe me i feel your stress. Its taken me a full week to control my anxiety since the Liberation as well. You are not alone! Hang in there and good luck.
    G

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  7. Thank you so much for sharing this journey with all of us. Rest well.
    Julie

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  8. I'm so happy that you're home safe again and willing to give it another go. At least you and Karen will have less anxiety going into this second round.

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  9. Hey Marc. I have been checking your blog constantly to find out that you made it back home. I look forward to hearing more about the process and the results. And what is next for you. Rest easy. Aarcyn

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  10. Marc, glad to hear some news from you and happy you are home safely. Looking forward to hearing more details of what was learned-- and wishing you all the best.

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  11. Marc, I think what delights me more than anything is that they found something wrong with your CNS vascular system. I hope that they can treat some of it soon and I will be watching with interest to see how you get on. I am taking my daughter to Poland again next week to have a stent placed in her R I Jugular after the PTA collapsed, so I would say that a doc/surgeon consulting with others is a good development. Michele (aka Dovechick on TIMS)

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  12. I wish you all the best!
    Hopefully you will experience as much progress as possible! You GO Marc

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  13. Marc,
    Glad everything went well. Been thinking about you. And you can feel Spring coming like a freight train!!
    kicker

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  14. Welcome home, Marc.

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  15. excellent to hear that you are home safe and sound;-)) and looking forward to reading more;-)) All the best for you and karen! I was thinking a lot about you and was keeping my fingers crossed...
    COIN ( TIMS) from Germany

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  16. Happy to hear that everything went well, and contiuned well wishes for further treatment of whatever you may have.

    pfrox9

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  17. Hi Marc,
    Brilliant you are home.
    Look forward to hearing more when you can post.
    Have a relaxing friday and weeken.
    Love,
    Herrad
    ps are you concisious thrrough the procedure?

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  18. Welcome home, Marc!! Get your rest and we'll gladly wait for the details.

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  19. Looking forward to your results, but glad you are home safe! God Bless!

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  20. I'm glad everything went well for you Marc. I hope you get a full understanding of the results soon and that it is something that they can treat. I'll be looking for your next post. Take care!

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  21. Marc, great to hear from you, man! Can't wait for your next update!

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  22. Wow Marc, 5.5 hours! You're a strong guy! Well done!

    Look forward to hear about which of the abnormalities they were able to treat! Fingers crossed that those changes may already give you some improvements!

    Steffi

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  23. on the Divine Wind
    away your wheelchair blowing
    end the suffering

    AKA johnson

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  24. Marc, yours is not a "silly little blog". It brings information, comfort and clarity to so many of us. Hope you are having a wonderful weekend! Glad you made it home safe and sound.

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  25. Hey, I don't read silly little blogs!!! This is good, award winning stuff.
    kicker

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  26. Thanks for all the words of support, everybody. They are incredibly uplifting and appreciated.

    I'll have a new post up soon, detailing the procedure and what was found. I promise...

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